The Formerly Autistic

Ruth Padawer looks at what we know about them:

The research by [clinical neuropsychologist Deborah] Fein and [researcher Catherine] Lord doesn’t try to determine what causes autism or what exactly makes it go away — only that it sometimes disappears. There do, however, seem to be some clues, like the role of I.Q.:

The children in Lord’s study who had a nonverbal I.Q. of less than 70 at age 2 all remained autistic. But among those with a nonverbal I.Q. of at least 70, one-quarter eventually became nonautistic, even though their symptoms at diagnosis were as severe as those of children with a comparable I.Q. who remained autistic (Fein’s study, by design, included only people with at least an average I.Q.) Other research has shown that autistic children with better motor skills, better receptive language skills and more willingness to imitate others also tend to progress more swiftly, even if they don’t stop being autistic. So do children who make striking improvements early on, especially in the first year of treatment — perhaps a sign that something about their brains or their kind of autism enables them to learn more readily. Researchers also say that parental involvement — acting as a child’s advocate, pushing for services, working with the child at home — seems to correlate with more improvements in symptoms. Financial resources, no doubt, help too.

For now, though, the findings are simply hints. “I’ve been studying autistic kids for 40 years,” Fein says, “and I’m pretty good at what I do. But I can’t predict who is going to get better and who’s not based on what they look like when I first see them. In fact, I not only can’t predict who is going to turn out with optimal outcome, but I can’t even predict who will have high-functioning autism and who will be low-functioning. There’s so much we still don’t understand.”